I checked his BG and he is 87... good.. right?!? normal.. right?? only not for a kid with no pancreas who you never know what is going to happen when they sleep... too much insulin can cause a parents worst nightmare.. well.. 3 more hours to check to make sure we will all have a good nights sleep... you never know which direction it will go in... nights like tonight you wish for the CGM.. that personal safeguard... the one that will let you know 'before' (in theory - and usually) trouble comes his way... but he does not have a sensor on.. so I don't anticipate much sleep tonight.. I am already rambling... Clearly there is much more and way too much on my mind... the guilt of halloween coming up.. .i don't know.. hating hearing my son say. "I like healthy things and I know it makes me feel the best, but I wish i could belive it ...when someone says.. you can have anything.. they meant it - I know I can't ... and don 't know if i ever will" and then he moves on.. that is way too deep for a kid.. acknowledging that a small fraction of his life sucks, he deals.. it is not fair... but I wish for him.. one day.. he could have 'anything' he wanted...
note: the problem here is that even if you try to let him have a small binge fest.. he doesn't feel good.. what is the fun in that anyway... (Hey you got to let them live and learn a bit.. and as most of you know, it does not take much for a small kid to feel the effects... of it all... and I mean "it all"
On Halloween we trade the 'loot' for a 'gift' from the great pumpkin of halloween who has a sweet tooth... but I still feel a bit guilty (not that he needs the candy) but that the whole 'ritual' of it all does not have the same satisfaction to him as it used to.. :(
Sorry to have jumped all over the place, I just felt a need to ramble tonight... I am thankful for so much, and so happy and proud of him, I wish I could make it all better... I would take a day.. anything... for him to feel he is 'normal' because I know he is... and I know what wonderful things he will do and accomplish regarless... just an easy day... would be a really nice 'treat'
1 comment:
I make wishes too. Like you I am torn what to wish for. My ultimate wish is a cure but I often find myself wishing for Sain's health and no complications. Her wish is always simple, "I wish I could be like everyone else."
(I tested Sain at 11:11 last night too... maybe the stars will align on two tired moms and our wishes will come true!)
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