Some random rants and raves...

Rave 1: So have to say that Jared is really enjoying his Jonas Brothers CD (trust me under any other circumstance... I would be gagging as my child embarks on a teen dream singing group love, but this time, for this reason, I am okay and totally supportive and a fan of the song myself ;) The son 'a little bit longer' is on repeat in our car, and he loves it and he and his little sister rock out to it, and he is really listening and picking up on the lyrics quicly. (Refresh for those who are not familiar with this song: it is a song written about diagnosis day for Nick Jonas the youngest Jonas brother who has type1 diabetes and currently wears on omnipod pumping system).

Rave 2: The Cooking is fun 'for diabetic kids' Cookbook is better than expected.. we made the mini pumpkin raisin muffins (2 for 12 carbs) and used some great organic ingredients all of which we had in the house, and they turned out great... fantastic actually! we stuck some candles in some for our neighbors birthday and they really enjoyed them too. A big hit, can't wait to try out some more recipies! The other interesting thing is that Jareds BG's were accurately accounted for ironically that night, and woke up in the best range possible so far (okay well a little low, but we take a reasonable low as a morning number as it happens to non diabetics too. Was it the truly thought out diabetic recipe? Humm.. will have to try some more to see just how well this whole 'eating as a diabetic' rather than just eating healthy balanced portions thing goes... to be continued.. and updated...

Rant1: and this is a BIG one!!! CGM denial letter came today from my insurance company.. although when i call on the phone they say different.. I have to say getting that letter sucked big time and made me pissed at a company who so far has been really understanding of our son's medical needs and worked with us really since diagnosis with him to get him the best supplies we can find to make him the most comfortable... I will appeal again and get on Dexcom's back too.. insurance said Dexcom has not provided what they need for proper verification of medical necessity and breakdown of costs.... since they are both playing with our money.. i think they are taking their own sweet time.. really.. if that $800 bucks was out of either of thier pockets.. you best belive they would be moving faster.

We are going to put a sensor on Jared again as AIC time is coming up and we like to have as much data for the Endo team as possible when we visit.. especially since we did last time (may 9th to be exact) and they were able to make such a difference to Jared and really reduce his headaches and yoyo BG's and my night waking rountine has become limited to 1pm as last check in and only as intuition thereafter forces ;) Most of you know what I am talking about...

And this one is running as just a thought.. not a rant or a rave.. but school is coming up and teacher training time for Jared is just weeks away... Gotta get prepared and get all the supplies and my 'lesson plan' for showing the teachers how this disease will affect Jared in thier classroom and lunch time and what to look for... and treatment plans... Good thinh Jared is becoming really self proficient at this point.. Makes me proud.. although it is scary to have a fresh 6 year old counting his own carbs and bolusing himself based on them... Hopefully he and his teacher will form a good relay team for this information and it will all work out.

Well that wraps it up.. of to do the midnite check and catch some zzzz's.

Just when you need it...

We made it thought the birthday madness which in our house involves both my (now) 4 and 6 year olds. born 2 years and one day apart! Things were getting back to normal only a few days after the family is gone and the sun is out, swimming classes are back on.. rooms to clean.. etc, etc.. and for Jared.. Pods to change. They don't hurt him, and they save him a whole lot of hassle with needles 10 times a day, but today was again.. one fo those days when he was mad.. and DONE and wanted his diabetes to go away. It was just yesterday when he asked.. why am I the only one in the family with Diabetes!?!? Which i answered with a question : would you want anyone else in the family to have diabetes too? and he thought for a second and said, no.. I guess you are right.. And that ended that... but I wondered.. does he feel alone? does he know we do our best for him and for his care, that just last night we needed to double team his limp sleeping body and wake him from his deep sleep to give him milk to cover his low!??! That we urge him to test often for his own good and bolus early to feel the best he can so he CAN feel normal after a meal ... Secretly, although he won't admit it when he is on his diabetic frusterated path... I am sure he does. We found his Better is Better book under his bed which illustrates (litteraly) how many pokes he is saved by using a pump and how much better his life is today and will be tomorrow by using it, that the frusterations of pod changes .. which helped too... but with all luck in the post, today arrived our very own Jonas Brothers song A little bit longer... the song Nick wrote about his feelings about being diagnosed with Diabetes.. and Jared asked if we could put it in the car and park at the mailbox and listen to it all... Also in this package was a cookbook for diabetic kids called cooking up fun. What perfect timing. All is peaceful and the kids are happy and Jared is feeling great!... Until the next time... "A little bit longer.. and I'll be fine :)"