Thursday, July 31, 2008

Not sick, just diabetic...

One of our friends asked us what was on the schedule for today... I responded with the usual list of; park, pharmacy to pick up prescriptions.. etc, etc... My son chimed in with ," We are getting a prescription because I have diabetes, not because I am sick.. just so you know..." I think he is really wanting to be as normal as possible... Is there balance for a diabetic who is in control and one who is 'living life'.. like a responsible non-diabetic?

Diabetes is 24/7 .. .it sounds extreme or to some... even somewhat of a dramatic "feeling sorry for your self" because "Cancer would be so much worse" or having "other problems on top of having diabetes"...would be horrible too. Are we looking to make things worse? NO, the thing is.. is that if you pretend with Diabetes you are not diabetic, you get sick.. so you go from diseased and dealing with it, to a sick diabetic in jeapordy of a coma!

I read a post today of a mother who has a daughter here in the area and that a 6th grader in her daughters school is in the hospital with a diabetic coma - 1 year post diagnosis... that scared the crap (*pardon the expression) out of me... if it could happen to her, it could happen to anyone.. another story of a child dying from strep throat due to diabetic complications... these are real.. and pretending they are not only gets you into trouble... doesn't it??

How can we as parents not stress or stop checking for a second when the reprocussions are unthinkable.

How do you deal with constantly worrying for your child? have you found a coping way to deal with the stresses without bottling them? I guess for now; I have blogging.

Sunday, July 27, 2008

Done, done and done...

Tonight my little guy declared to my hubby that he is "done" he is tired of diabetes and he does not want to check himself anymore, he usually is good about all this, he does it, he understands, he deals as best he can. Not tonight, it seemed to be brewing as his reply to a simple, time to check your BG has been replied to with "you don't need me to, you want me to"... something was brewing...

I think this is all starting to sink in to him a year post diagnosis (just a few weeks ago) that for now, it is not going away... that his 6th birthday is coming up in less than 2 weeks and he, yet again, has to "waste" a wish on something he thinks cannot come true for him on his birthday. he should not have to wish for a cure - every wish he makes - , he too, like all other kids should get petty wishes of Lego, Pokemon, trucks, rescue heros and everything fun... but he still wishes for his diabetes to go away. He is done.

How do we overcome this? does this go away before a cure? Do we change our polite answer to others of "how is it going for him?" to "it sucks?!!!??!" instead of, he is doing great??

I want to make all his wishes come true, but this one, for now, I can't!

how can you give a child back his childhood? how can you make him believe once again wishes come true? How can y0u make them forget for one second about the disease and remember the little things?

Perhaps I can get his CGM back on him, he is tired of carrying around that too... lots of 'stuff' for a little guy to deal with... too much 'stuff' .... There has got to be a way...

How do you deal with this? Tomorrow is a new day, perhaps he will feel better when he wakes... and us too...