A great check up...

Well.. as usual 3 + months has come and gone and it was time for the endo again... We got a call from Childrens hospital clinic stating that Jared has not seen a social worker since his second appt post-diagnosis and they would like to try again.. could we come a bit early for an additional appt. Of course... he had not spoken a word to them when they tried at the previous appts... this time he talked.. he chatted away quite frankly... for 45 minutes.. everything from diabetes to lego... he has come a long way...

But the best news came in in the form of a sticky note attached stuck to her notepad... it said 6.4! I knew what that meant and was ready to boot her out the door to hear from the endo to follow to confirm that that 6.4 was in fact Jareds.

I am pleased to say.. indeed.. it is Jareds... she seemed as thrilled as I was.. and said he could be a poster child for diabetes.. perfect control and according to the CGM read outs spends 80 % of his time in range.. which is like that of a non diabetic.. and yes, i am an optimist, for a moment, although i know it is not the truth... maybe he isn't diabetic.. okay it was a thought in passing, it comes and goes, some realists call it denial.. but a mom can dream, can't she?!?!? (Note to readers: during the months past, and days.. which included an ER trip with ketones and stomach flu..vomiting at the er, and occlusions and pods that did not work... it all still turned out okay - while it is happening it all seems like the number will be high, that the total control is not there, and that the above fasting glucose numbers in the morning were a sign that a good A1c could not possible be....)

he is growing on his curve and gaining weight on his curve... and we could not be prouder of him.. he is the hero, the rockstar and the one who puts up with the 'rules' of the game.. and mostly he makes the right choice. sometimes with a grain of salt, and a few disappointed sighs... but he is a good kid, who is really doing an amazing job! No matter how much we act like a pancreas for our children, it is up to them to deal with it... and today, i am the proudest mom I can be!

I am not sure it is the A1c's that make me so proud, but more the confirmation that all the challenges he faces are worth it... and that they are going to in the long run pay off...

"Something is not right"

Have you seen the remake of Madeline the kids movie??? Well the nun wakes and says with a finger to the air "something is not right".. Last nite at 2:30 am.. I woke.. something was not right! I was not sure what.. I was exhausted enough to for a moment try and tell myself after i tried to go to the bathroom, that i should just go back to bed... but i did not have to go to the bathroom, nor could i go back to bed.. something was not right.. I woke a bit more from my mid night stuper.. and decided to check on Jared, whose CGM was beside him, but the little monkey had turned down the alarm for night to 50! OY, well it said 56 when i went in... that was the pager to my brain that night.. not a direct line.. a little luck but a definate feeling to wake and disturb me... While i checked his BG, it vibrated and woke him... he jumped to read it... and said, how did you get here so fast... I treated him and waited... 10 minutes later (Which is quick i know.. i usually wait 15 but I was tired...) he was only 61... at this second round of waking, he was up too... he asked me how i knew.. i told him the story of Madeline and how 'something was not right'.. he giggled and said he loved me and was so happy I had 'that feeling'....and now he wanted to go back to sleep, knowing he was safe...

What an amazing feeling to have your little one feel (Even if for a moment) safe enough to express it... and to fall back asleep :)

Cheers to all Pancreas Parents.. .we are not alone

http://www.youtube.com/watch?v=xlhfrNmk5os&feature=related

In the wee hours we are awake, checking, and making sure our little ones are safe...

We love our children so much!

Kudos to this girls video...

It was a laugh for us to watch this... enjoy

http://www.youtube.com/watch?v=_5AVRRRwX_E

Always good for Jared to feel normal... and seeing other kids with the likely similar feelings make his feelings validated, even if I have never felt them before.... other kids seem to really be able to express it well. Way to go Katie!