Thursday, August 14, 2008

Some random rants and raves...

Rave 1: So have to say that Jared is really enjoying his Jonas Brothers CD (trust me under any other circumstance... I would be gagging as my child embarks on a teen dream singing group love, but this time, for this reason, I am okay and totally supportive and a fan of the song myself ;) The son 'a little bit longer' is on repeat in our car, and he loves it and he and his little sister rock out to it, and he is really listening and picking up on the lyrics quicly. (Refresh for those who are not familiar with this song: it is a song written about diagnosis day for Nick Jonas the youngest Jonas brother who has type1 diabetes and currently wears on omnipod pumping system).

Rave 2: The Cooking is fun 'for diabetic kids' Cookbook is better than expected.. we made the mini pumpkin raisin muffins (2 for 12 carbs) and used some great organic ingredients all of which we had in the house, and they turned out great... fantastic actually! we stuck some candles in some for our neighbors birthday and they really enjoyed them too. A big hit, can't wait to try out some more recipies! The other interesting thing is that Jareds BG's were accurately accounted for ironically that night, and woke up in the best range possible so far (okay well a little low, but we take a reasonable low as a morning number as it happens to non diabetics too. Was it the truly thought out diabetic recipe? Humm.. will have to try some more to see just how well this whole 'eating as a diabetic' rather than just eating healthy balanced portions thing goes... to be continued.. and updated...

Rant1: and this is a BIG one!!! CGM denial letter came today from my insurance company.. although when i call on the phone they say different.. I have to say getting that letter sucked big time and made me pissed at a company who so far has been really understanding of our son's medical needs and worked with us really since diagnosis with him to get him the best supplies we can find to make him the most comfortable... I will appeal again and get on Dexcom's back too.. insurance said Dexcom has not provided what they need for proper verification of medical necessity and breakdown of costs.... since they are both playing with our money.. i think they are taking their own sweet time.. really.. if that $800 bucks was out of either of thier pockets.. you best belive they would be moving faster.

We are going to put a sensor on Jared again as AIC time is coming up and we like to have as much data for the Endo team as possible when we visit.. especially since we did last time (may 9th to be exact) and they were able to make such a difference to Jared and really reduce his headaches and yoyo BG's and my night waking rountine has become limited to 1pm as last check in and only as intuition thereafter forces ;) Most of you know what I am talking about...

And this one is running as just a thought.. not a rant or a rave.. but school is coming up and teacher training time for Jared is just weeks away... Gotta get prepared and get all the supplies and my 'lesson plan' for showing the teachers how this disease will affect Jared in thier classroom and lunch time and what to look for... and treatment plans... Good thinh Jared is becoming really self proficient at this point.. Makes me proud.. although it is scary to have a fresh 6 year old counting his own carbs and bolusing himself based on them... Hopefully he and his teacher will form a good relay team for this information and it will all work out.

Well that wraps it up.. of to do the midnite check and catch some zzzz's.

1 comment:

Angie said...

We have had "A little Bit Longer" on repeat for the last few weeks, too! :)