Tonight my little guy declared to my hubby that he is "done" he is tired of diabetes and he does not want to check himself anymore, he usually is good about all this, he does it, he understands, he deals as best he can. Not tonight, it seemed to be brewing as his reply to a simple, time to check your BG has been replied to with "you don't need me to, you want me to"... something was brewing...
I think this is all starting to sink in to him a year post diagnosis (just a few weeks ago) that for now, it is not going away... that his 6th birthday is coming up in less than 2 weeks and he, yet again, has to "waste" a wish on something he thinks cannot come true for him on his birthday. he should not have to wish for a cure - every wish he makes - , he too, like all other kids should get petty wishes of Lego, Pokemon, trucks, rescue heros and everything fun... but he still wishes for his diabetes to go away. He is done.
How do we overcome this? does this go away before a cure? Do we change our polite answer to others of "how is it going for him?" to "it sucks?!!!??!" instead of, he is doing great??
I want to make all his wishes come true, but this one, for now, I can't!
how can you give a child back his childhood? how can you make him believe once again wishes come true? How can y0u make them forget for one second about the disease and remember the little things?
Perhaps I can get his CGM back on him, he is tired of carrying around that too... lots of 'stuff' for a little guy to deal with... too much 'stuff' .... There has got to be a way...
How do you deal with this? Tomorrow is a new day, perhaps he will feel better when he wakes... and us too...
#SpareARose 2020 & A DOC Valentine
4 years ago
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