Well.. as usual 3 + months has come and gone and it was time for the endo again... We got a call from Childrens hospital clinic stating that Jared has not seen a social worker since his second appt post-diagnosis and they would like to try again.. could we come a bit early for an additional appt. Of course... he had not spoken a word to them when they tried at the previous appts... this time he talked.. he chatted away quite frankly... for 45 minutes.. everything from diabetes to lego... he has come a long way...
But the best news came in in the form of a sticky note attached stuck to her notepad... it said 6.4! I knew what that meant and was ready to boot her out the door to hear from the endo to follow to confirm that that 6.4 was in fact Jareds.
I am pleased to say.. indeed.. it is Jareds... she seemed as thrilled as I was.. and said he could be a poster child for diabetes.. perfect control and according to the CGM read outs spends 80 % of his time in range.. which is like that of a non diabetic.. and yes, i am an optimist, for a moment, although i know it is not the truth... maybe he isn't diabetic.. okay it was a thought in passing, it comes and goes, some realists call it denial.. but a mom can dream, can't she?!?!? (Note to readers: during the months past, and days.. which included an ER trip with ketones and stomach flu..vomiting at the er, and occlusions and pods that did not work... it all still turned out okay - while it is happening it all seems like the number will be high, that the total control is not there, and that the above fasting glucose numbers in the morning were a sign that a good A1c could not possible be....)
he is growing on his curve and gaining weight on his curve... and we could not be prouder of him.. he is the hero, the rockstar and the one who puts up with the 'rules' of the game.. and mostly he makes the right choice. sometimes with a grain of salt, and a few disappointed sighs... but he is a good kid, who is really doing an amazing job! No matter how much we act like a pancreas for our children, it is up to them to deal with it... and today, i am the proudest mom I can be!
I am not sure it is the A1c's that make me so proud, but more the confirmation that all the challenges he faces are worth it... and that they are going to in the long run pay off...
#SpareARose 2020 & A DOC Valentine
4 years ago
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CONGRATULATIONS!! 6.4 is amazing!
(Looks like we are on very similar schedules at children's -- our appointment was a week and half ago. Maybe we'll bump into each other sometime :) )
Crazy, we were supposed to go earlier too but Jared did not want too go for his birthday - can't blame him;) However she did let him know next visit is the blood draw... he is petrified! I did not even realize he caught that part yesterday, but today he woke up.. .asking if the blood draw was today.. that he was scared. MY little one tried to calm him down by explaining they were just going to color on his arm.. that is what a blood 'draw' is :)
hopefully we will cross paths, it would be great for the kids to know there are others out there too... no others at his school or even in our district.... that the district nurses office knew about..Crazy eh!
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