New ingredient...and a recipe...

So When we were visiting my brother a while ago and were at a farmers market (yup he lives in CA, hence the markets are still open this time of year) we stumbled upon a dessert that was 'sugar free' without artificial sweeteners and seemed to get along with Jareds BG :) It involved Raw coconut, pure unsweetened cocoa, pure shredded coconut dried, and agave for a bit of sweet.

I was looking for the recipe for raw coconut haystacks... and in my searching found this other interesting recipe which would be a great to try...

The Raw Food Frosting Recipe I got was from a post on the Raw Freedom Community. While this recipe features lemon juice, you could make the same recipe with most fruits. I have reprinted it below with the bloggers modifications. (cupcakeproject.blogspot.com)

1 C coconut oil
1/4 C agave nectar
rind from 1 large lemon
1/4 C lemon juice

Beat the coconut oil until creamy.
Mix in the agave nectar.
Mix in the lemon rind and lemon juice.
The frosting will spread well. However, it will not be thick enough to pipe. After you put it in the refrigerator, it will harden.

I liked it much better cold and would strongly recommend serving it that way.

I have heard that both raw organic (if possible) coconut oil and agave are both low glycemic and pretty balanced overall for blood sugar responses..

This is the time of year when sweets come out and it is always a good idea to have some good 'D'Friendly recipies up your sleeve.

If i find the one for the haystacks.. or experiment and succeed... Iwill post it too.

A prospect of a cure..?!?! sooner than later???

This was released NOV 17, 2008

http://www.msnbc.msn.com/id/22425001/vp/27774926#27774926

I know, many times before we have heard of this option of an upcoming cure.. but with 2 drugs that are already on the market and currently offered to cancer patients, this is interesting... even if only to put in the back pocket. I have NEVER heard a report that speculates a year out for a cure... have you??

Gratitude - by Jen Hilt

"Gratitude" - by Jen Hilt

"At least it's not cancer", I must have heard this phrase at least 3 times during the aftermath of my son's diagnosis. Hearing this as a response to Henry's new diagnosis fueled my confusion, anger and depression. I was supposed to be grateful he had diabetes instead of some other awful illness? Why did he have to have any medical condition?
Around the same time, while working as a nurse, I needed to give a teen living with cancer an injection. The patient was notably apprehensive so I said in hopes of offering reassurance that "my son had diabetes so in addition to all my years giving injections, I give them to him several times a day." I was surprised to receive a pitying look from the teen, "I will recover from this cancer but your son will always have diabetes."
This wasn't what I was expecting to hear. To be candid, until someone figures out how to jump start a failed organ function this is true. And this young person with cancer sounded grateful not to have diabetes. Gratitude springs up in the most surprising places.

World Diabetes Day. Diabetes Awareness!

So we woke at home this morning thankfully feeling good and the hospital visit behind us, and how fitting it was his first day back at school after his stay at childrens and it is diabetes awareness day! Jared asked, what does that mean... he was already aware of how diabetes feels...

I told him it is so others know how it could affect them to, and how rampant it is ....

I did not go into these details with him, but got these from another great blog
A few facts:
-Every 10 seconds a person dies from diabetes-related causes.
-Every 10 seconds two people develop diabetes.
-Over 250 million people live with diabetes worldwide. In 2025, this figure will reach 380 million.
-More than 200 children a day develop type 1 diabetes.
-In developing countries, close to 75,000 children live with diabetes in desperate circumstances.
-Type 1 diabetes is increasing fastest in pre-school children, at a rate of 5% each year.

I have really enjoyed wandering through others blogs today and watching the videos of thier diabetic kids talking about their experiences... it has been enlightening... thanks for sharing.

Like all other days since June 20, 2007, Diabetes has my attention today! ;) We are completely aware! Spread the word!

Home again, home again, jiggity jig...

What a day! we ended up at children's ER after wondering why i was wondering how sick I was going to let Jared get before taking him.. needless to say.. shortly after the last post we were off. (I reflected on my own question, of how long to wait... and found my own answer)

I was glad we made it when we did, the ER was quiet and Jared was borderline DKA.. what does that mean.. well, pretty much at the point whereby classification they call it DKA is by lab results, and his were below the specified amount, by 1 unit...so he was considered DK (minus the A) no acidosis .. thank goodness... that is a bridge we have not yet crossed.

So after 11 hours we are home, with thier deliberation of if we needed to overnight there or not.. we opted to come home and go back again tomorrow for more follow up labs...

The concensus was ???? you heard it.. ????!!!! ...they said, they have no reason to tell us why this happened that they know of, since he had no symptoms of why this occured, but from what they have been seeing of 'diabetic kids', this seems to come and go for a few weeks, once it begins :( I am hoping we are the exception... and will chalk this up to a bad diabetic day :( and be happy with no reason... the ??? question marks come in because he had elevated white blood cell counts which indicate the body trying to fight infection.. only there was no infection to be found today... so we will take that test again tomorrow and see what was up there... they are hoping the problem will present itself, i am hoping the problem will resolve itself. Their business, vs. my business! I hope we win ;)

They did mention if i had waited much longer we would have had DKA to deal with... so good thing we did not wait... I do have to say.. they mentioned why did i not check ketones earlier.. I have to be honest.. ,and not saying i am perfect and i am not going to beat myself up over this, but a kid with a weekly average of 148 BG was not indicating illness, did not lead me to feel the need to check... they mentioned that with abnormal lows, there is reason to check which did preceed the high before the ketones 3 days prior... albeit (or is it all be it?) I guess the bottom line, is to now add one more repetoire to the 'to do' list and do random ketones tests.. just because?!?!?

Bottom line: trust your mommy (or daddy) instincts... you know them best... and even if and when you question yourself... belive in yourself.

Tonight, Jared is playing and back to his normal self... strange...but glorious.. home again, home again.. jiggity jig :)

p.s they had 4 dr's check his cough.. they say it is a perfect age for boys to develop some sort of nervous tick... and for now... this is his.

The Ketones are not a band...

Woke up this morning.... (nope not the beginning of any hit song) but the anthem of a morning with ketones... not sure where they came from.... in fact Large ketones were, and are ...so.... left field...

We have been up since the wee hours and Jared has a bad tummy ache now. We are trying to treat them at home with consult of childrens hospital.. but this has not happened to us before except with the tummy flu...

the most interesting part of this, is the phone dr said well it sounds like his cough has developed him some ketones.. I told him we were told for the past 2 months that it is a habitual cough...
he suggested we get it checked out again by a different dr....

What and when do you go to the hospital for treatment? The ketones seem to be joined by vomiting now.... hummm...chicken or egg...??? ketones or flu???

interesting...

very interesting...

send us potent insulin wishes and no ketones dreams...

that feeling...

I have had a hard time today shaking 'that feeling' last night was one of those odd nights, when Jared ate something he often does, we know the carb count, we didn't do anything out of the extraordinary.. went to bed with a in range number... and when we checked him at 10:30.. he was 44! why? .. i know..., you know...., all us parents of diabetics and diabetics alike know..., there is no reason.. i rechecked the BG history, his carb history, and his bolus and basal history.. nothing again out of the ordinary...

we treated him and waited the 15 minutes... still needed more... but not too much.. don't want him waking up at 300~~ well... we waited 15 minutes more and barely in range... but on the rise we decided he was on an upward trend and it was safe for us all to go back to bed.. he woke at 65... again strange.. these strange days leave me with "that feeling" that unsettled feeling that no matter how hard we try to 'control' diabetes, it has its own agenda.

I am also still waiting on the celiac and vitamin D results from his last endo appt... and so i feel... unsettled. I was actually unable to really be alone and okay this am.. after dropping off the kids, i usually come home to do freelance work, or run errands, or have a whole list of things to do, or that i could do.. but today I chose (i think) to erase my mind... well, i could not think of one thing that i wanted or was supposed to do... Thank goodness my neighbor and good friend called and asked me if i wanted to join her for a bit and carpool to pick up our kids. I think that feeling was that i really needed a hug, and a friend...I was feeling down and needed a hug.. those nights suck and really make me appreciate that we catch the lows and so far have avoided the consesquences of not... but that low, made me feel 'low' and carried right to the morning... I think it was waking my little boy over and over to force him to drink in the night, from his slumber... to wake him from his peaceful dreams to poke him with a glucose test.. or his reality (yes, pun intended!)

.. thankfully the sun is shining, and I am feeling better now, .. and all is right again.

Anxiety? or a bad habit?

So my son has picked up a habit... no, no, he is way to young for smoking or drinnking... he has a nervous cough... he habitually clears his throat.. we have been told it is not physiological, but rather habitual.. and for now, I will belive them...
Has this happened to any of your diabetic kids or friends? or is this just a personal thing... I mean, sure a 6 year old with diabetes has more stress than the average 6 year old.. but still.. enough to perpetuate the constant clearing of a throat? OY! Playing at the park, swimming class, in the movies, at school.. most of the day...... not when he sleeps, but aside, most of the time..

any insight?

the only diabetic i grew up with had an eye tick... figured it was unrelated...and so i am hoping for my sons ... just a 'phase' I can deal with... but does it ever go away? (It has been almost 3 months now)

*Note : isn't it funny how we can reasonably calm others about these issues, but can't always seem to grasp it when it is so close to home ;)

Totally unrelated but needed to air...

So one of my best childhood friends tried to end her life.

She is 'barbie' .. no that is not her name, but to me, she is perfect. She is all the attributes inside and out of what barbie should be 'born with' (yes i know she is plastic... but she does have perfect breasts, a small waist, blonde hair and blue eyes with great lashes that never clump ;) ) and since the manufacturers of barbie intended for her to be a role model to little girls, you would like to think they intended for her to be smart, witty, charming, funny, caring, and a good friend. Well, again, my friend, is all these things.

Last time we spoke (a few weeks ago) she was mentioning that regardless of Diabetes, I was so lucky to have 2 of the most happy, charming and smart kids, and pretty lucky overall to have the life i have... I agreed. I was a bit jealous of her life too, still a bachelorette, and involved in a fun career, got to sleep in on weekends, and lie at the beach for hours if she should choose to...and smart enough to know she did not want to settle with the last long term man she was dating. ... In a heathy way, I envied her, she envied me....

I now know, (and it obviously was not in any direct relation to me..) but that she really was not happy in her life, and she was wanting something different... and instead of seeking it, her depression got the best of her and she chose to try to fall asleep with some sleep-aid and not wake ... I am feeling blessed that it did not work, that I have a chance to spend more time with her, and to enjoy her company, even if she is not currently happy. I know there is more for her still, and I want to be a better friend. When i got a hankering to call her at 1am and leave a message to say hi, and she actaully answered crying, i should have known... I was glad to be there that night, but that is not enough.. she needs someone there always ....now... and I hope to always be the best friend I can be...to my friends, my family and to me.

Thank goodness Halloween is only one day a year!

Well all is still and quiet... until the late pitter patter of foot steps through the house .. Jared woke to pee... we check his BG which has been great in fact for 3 days solid... so good in fact, that if i had a working printer, i would have printed the download and framed it... because it was not hard to maintain that freaky few days of diabetic perfection...well now we check him and he is ...... drum roll, a ghostly and ghouly.... halloweeny 483... now that may not be such a shocker had he eaten a whole bag of candy... but we hit 3 houses, one which was ours, and we gave out LPT (little plastic things) one was our neighbor and good freinds, who specially made my kids bags of chips and annie's fruit snacks with a few stickers, and one random house where no one was home, so the kids got a reese snack stick (i think it is called). MY kids chose to come home and do crafts in our warm house vs wandering around collecting candy...So in total, we offered him a dark chocolate bar(Which i chose the mini one with the lower carb count to offer him treat if he did not want to go trick or treating, because he is catching on that for a diabetic kid, this holiday can kinda be candy revolved, and would prefer to do crafts, and things he likes than wander around and collect candy which he knows he likely shouldn't eat for his and my reasons. So in total after dinner, there was the dark chocolate which we gave him 14g, chips 17g, and a reese stick which he begged for (15g ) "since all other kids he knew were eating far more than this and he would not ask again to eat his treats when this night was done" (he offered up that one). ... before bed ... 180 and now... 483

All i can say, is thank goodness halloween is only one day a year... talk about junk food pressure!

I hope you all had a wonderful and happy halloween :)

check up ...ahead...

Well the only appt our practitioner had available was/ is the day before halloween unless we wait until next year... which since this appt combines to get the flu shot.. and test for celiac.. we opted for the all inclusive day before halloween appt.

my hubby will likely be away, and bless my daughter for coming and watching all this go down.. she is a rooter tooter cheerleader for him (most of the time) only yesterday at his podiatrist appt when he had some scraping and freezing to be done.. (thanks to swimming lessons at the local public pool) she closed her eyes and ears and ears and started crying too (along with him after he was holding it all in... Did I mention they want to give her a flu shot along with him (and me) at the same time?!?!?

I am honestly going to say.. this is one appt I am not looking forward to in the least bit!

35 is the magic number to start the day...

To start the day off right, most anyone would say "consesus says have a healty breakfast" .. well deciding what the will be when put into the hands of a 6 year old (diabetic) always left us wondering what to bolus for pre-meal.. as we have been really trying hard to do to keep him more leveled with less ups and downs... so we finally found a magic number that works for many of his favorite quick easy and pretty healthy breakfasts. 35... so when we wake, we check and bolus.. and this gives him the great start to a day with all attempts to keep his numbers in check all day... and as long as we all move in sync to get breakfast on the table within a reasonable amount of time... everyone is happy :)

p.s We also find that this number instead of just the 13 (for milk) we used to do ensures he knows he must eat all his breakfast for a good start to the day... we try and see the bright side ;) and he manages well until snack or lunch at school.

Back on track...

Well, I have been lurking around on the blogs, and not doing much writing myself... I was kind of hoping all would be quiet on our front, and did not really have any updates, the strange Meter error 3 from Jareds PDM was on my mind, but chalked it up to user error, and dealt with the extreme waste of strips... I had an incling to put his sensor for his CGM on ... and well, for a pack of pokeman cards, he was willing... he always says when it is over, it did not hurt as much as he remembered, and we again remind him.. he always says that.. so this time, remember.. it does not hurt ;)

He was having a bunch of low alarms at night, which is not unheard of, and a big reason why we have a CGM... and I (as usual) double check the CGM data with the glucometer, built into his Omnipod...(Which we are a fan of) However.. the data varied way too much for comfort... his CGM said 66 and his meter said 179... an hour later I tested him again... and this time the CGM said 55 and the meter said 180... and within 3 minutes the CGM alarmed again with a rediculous 39! I was a bit paniced, and decided if he just had a glass of milk or OJ, we could all sleep.. and if he wakes at 300+ in the morning, I could deal with that... Sure enough he did... I called Omnipod and asked exactly what does Meter error 3 mean.... the answer ... get ready to be shocked... it means there is a glucometer error and you should not trust the data!!! Call me crazy... but I did not get that from Meter error 3!! I was upset, they tried to calm me down by letting me know that they would 'overnight' me a new one... well on a friday nite.. 'overnite' means monday... So we planned.. like all diabetic families we negotiated our way with a glucometer and remote for the pump, making a pod change happen so when the new one came on monday, jared would not have to have extra insertions when we the new remote came... this was hectic, but such is life with T1 kids... (fast forward) Monday 5pm, I call too Omnipod to track that little bugger remote down as the current pod is beeping for expiration... and well.... (show my sad, disappointed, pissed off face) they informed me, that the order was only placed that morning, meaning tues afternoon at best I would have it. Now not that this was a rant post.. but I informed them (And take into consideration that the folks at Omnipod are helpful and most of them are either diabetics themselves, or parents of diabetics kid(S) ... I reiterated to them, that we were not waiting for a new book, or music disk, or toy... but a life line... a reliable and expected machine to function as our kids pancreas... She tracked the package, called me back and said they would send a few extra pods to deal with the multiple changes that would have to be made to accomodate the delay... All this sucks... I love his omnipod, but that was making me mad... first the ambiguous 'meter error 3' then the ' overnite shipping' that took 4 days... but it all turned out happy in the end, our new PDM came, and Jared toughed it out ... quite frankly, other than having to drag around a remote, and a glucometer, and a CGM for triple protection... he dealt.

So here we are... trusting a new device again... and i do, i have to...after all, he does.

"tape it to your forehead!"

So we are having small issues with Jared forgetting his Omnipod remote (the control to his insulin pump) at school.. (wel technically the whole diabetes supply kit he needs daily). he is 6 and in 1st grade.. and is really self sufficient at school with his care... I think we all forget how little he is to remember all this stuff... he is thinking about homework, lunch bag, library books, sweater, school bag... (probably the silly thing the boy next to him is doing, how cute the girl looks in pigtails... - I don't know...) but he is clearly not thinking about bringing home his 'diabetes kit' which is currently housed in a camera case with a carbeaner to attach to the side of his pants or school bag (we removed the strap when the teacher said he really was not wearing it anyway)But now.. this is the (yes.. gasp here) since school started that he has forgotten it... the gasp was for the times we got all the way home, and he felt hungry but could not bolus for food with out the remote or checking his BG first...but the strange thing, is that the teacher and I both ask him.. (at our respective times - she when he is packing up, and me when he gets in the car - do you have your 'kit' we both get 'yes's) but no kit makes it home... I feel the pressure to move out of way of the long line up of cars to pick up their kids.. but this is becoming silly... I am considering taping it to his forehead - not really - but it sounds like an option at this point ;)

Any ideas of what works for your kids? are we putting too much stress on him to be self sufficient and manage his own supplies?? or is this just a passing rebellious stage.. he is also not wanting to wear his medicalert necklace.. he came home yesterday with the medic alert part in his kit, and a surf board hanging off his necklace ;P can you blame the kid?

These kids have to deal with so much... how can we make this smoother? I don't want to ask the teachers to do one more thing for him... but I am almost at the point, where I may need to ask them to help me help him be more accountable than with just a question... double checking can be hard in a class of 24!

Okay.. babbling on here... I think i need to put the shoulder strap back on and make the poor kid wear the cool camera case again... (just thinking out loud) we did not used to have a problem.. ahh lets blame it on the carabeaner.. and not the boy... after all -he is so darn cute and tries so hard...

I couldn't wait...

11:57pm... couldn't wait anymore... 67... well.. that solves that... a small sigh that we did not wait.. a half a glass of milk... and we can all rest a little easier...

good nite.. for now ;)

a tad supersticious...

11:11pm.. I am a bit supersticious still as an adult.. and when the digital clock shows all the same numbers, if I am in the right mind set.. I still..make a wish. Tonight.. I got to make an wish at 11:11pm just before i went to check Jareds BG. I knew what i wanted to wish for, but I am so careful with my wishes.. because like a child, i prefer to wish for what i know can come true... so my words in my wishes are so very carefully chosen... Of course we all know what the 'ultimate' wish is.. but how do we wish for it??? a cure? diabetes to just go away?? no complications?? easier life?? Less issues for him to deal with??? Less pressure for him?? I never know quite how to phrase it.. I am beginning to think it is a good thing I am indeed supersticious, because I have by now, likely worded this 'desire' in so many ways.. some part of it.. in fact 'any' part of it 'has' to come true... I can't complain because we have not had any extraordinary complications to date.. lows.. yes, highs.. yes.. ketones with the flu.. yes.. IV's and hospitals for what other kids miss only one day of school for.. yes.. but all in all.. we are so lucky he is responsible (as responsible as a 6 year old can be) and is in tune with his body.. and does not rebel too much... but I do wish for him to have the same 'normal' as other kids...

I checked his BG and he is 87... good.. right?!? normal.. right?? only not for a kid with no pancreas who you never know what is going to happen when they sleep... too much insulin can cause a parents worst nightmare.. well.. 3 more hours to check to make sure we will all have a good nights sleep... you never know which direction it will go in... nights like tonight you wish for the CGM.. that personal safeguard... the one that will let you know 'before' (in theory - and usually) trouble comes his way... but he does not have a sensor on.. so I don't anticipate much sleep tonight.. I am already rambling... Clearly there is much more and way too much on my mind... the guilt of halloween coming up.. .i don't know.. hating hearing my son say. "I like healthy things and I know it makes me feel the best, but I wish i could belive it ...when someone says.. you can have anything.. they meant it - I know I can't ... and don 't know if i ever will" and then he moves on.. that is way too deep for a kid.. acknowledging that a small fraction of his life sucks, he deals.. it is not fair... but I wish for him.. one day.. he could have 'anything' he wanted...

note: the problem here is that even if you try to let him have a small binge fest.. he doesn't feel good.. what is the fun in that anyway... (Hey you got to let them live and learn a bit.. and as most of you know, it does not take much for a small kid to feel the effects... of it all... and I mean "it all"

On Halloween we trade the 'loot' for a 'gift' from the great pumpkin of halloween who has a sweet tooth... but I still feel a bit guilty (not that he needs the candy) but that the whole 'ritual' of it all does not have the same satisfaction to him as it used to.. :(

Sorry to have jumped all over the place, I just felt a need to ramble tonight... I am thankful for so much, and so happy and proud of him, I wish I could make it all better... I would take a day.. anything... for him to feel he is 'normal' because I know he is... and I know what wonderful things he will do and accomplish regarless... just an easy day... would be a really nice 'treat'

the sirens of occlusion...

I should have had a clue after a wonky BG day in school... one that had the teachers baffled and on the phone... but as most of you know, BG's that vary tremendously really can indicated many things, or nothing at all ...

he was 57 before lunch and HIGH at the end of the day... although an hour later he was back to 140... so what was up.... the teachers parting words were... have a good nite, I feel for you.. I remember not sleeping... and from the sounds of it.. tonight might be one of those nights...

Foreshadowing.. for sure!

he went to bed... in range.. with tons of insulin on board, due to a pasta dinner and a hungry growing boy.. and so I kept checking him every hour, because i am trying the 'pasta night' extended bolus for 8 hours... well... his BG was 340 at 10:45 so i knew bedtime was not in sight for a while... Midnite.. HIGH... hummm... forced a bolus to correct... (actually hubby did it... after a day like that.. i needed some respite from the chaos..) and about 2 minutes after his walk back... the siren went off.... HUH .. you ask.. SIREN??? Jareds pod sirens when it goes into auto shut off... occlusion :( he comes running in scared... and i knew what had to happen... my hubby on the other hand has not heard the occlusion siren before... so it is quite new .. and intimidating... so 12:30 here we are changing the pod of a cute and very sleepy boy... He was a trooper... we let him sleep in our bed, and brought his sister in too.. it was one of those nites... closer is better.. might mean a bit more sleep

He woke up and went into his room.. dad had left some lego for him... he got all excited and was not expecting it.. I told him the pod fairy must have told dad to leave it out for the bravest boy.. (note: not that pod changes dont 'hurt' per say... but at midnite.. no one needs that S**T!

Funny story: The first time I heard the siren my brother and dad were in town... the lot of us searched the house when we heard it.. including Jared.. looking for what toy or appliance was making the high pitch squeel... it turned out then to be my boy.. well his pod anyway... so we learned... hear an electronic noise.. check the boy!(pod)

Off to school.. hoping the new pod will bring peace and quiet for Jared and his teacher ;)

Proud of her for speaking out...

A true hero of a mom, a person, and a spokesperson for all our children.... I love her...and I cried...when i saw the commercial..it caught me by surprise.

Her son has been a mentor and friend to our son...She has been a support and a role model to me!

what a great family!

http://www.youtube.com/watch?v=1rSITfYSxa8&feature=user

Post the origional post, I come back to this post of mine, not really realizing how contriversial it is.. nothing in politics ever is... but as parents of diabetic kids, and me knowing this woman and getting the call from her October of last year that her son had a seizure in the night... is why i tear up, because she is a hero for speaking out, no matter the forum.. I know in my heart, she did it not to help the politician first and formost but to help her child and all of ours... to raise a voice no matter the forum... to raise awareness of what a diabetic child endures - period. There is no pretending that everything 'can be normal'... it isn't and until resolution... it won't be.

This is NOT just a dramatic commercial.. this is real, this IS our lives, this is a truth ... not for the politician but for diabetics... seeing this commercial was like my first time saying out loud in a group forum that my son was diabetic.. it makes it real, the world does NOT know what it is like to live with a diabetic child... never mind the prospect of a cure, but dealing with today.. even more granular.. dealing with each moment!

Today I have decided that if I can ever have a moment to help others, and mostly families of diabetics like ours, I will... We cannot hide in the shadows of ignorance.... Our children have a different 'normal' they deal with more S**T than most adults can handle ... They are heros who deal with so much each day...

do you say YAY when you meet another diabetic kid? Is that twisted?

We (maybe just me, but I am sure Jared feels the same way) have felt rather alone.. since we have not met any other diabetics in the immediate area... a few at SKWIDDs meetings of course, but none at his schools, the playgrounds near us... but today was different...

After school we went to the pool, went in at 160 BG and then jared hopped out after 30 minutes.. tested when he said he was tired and hungry.. and was 54... I was happy he recognized that... that would have been real trouble...so he had 16g (fruit leather) and we waited and re-tested... 51!??!? kind of getting nervous.. had him have 16g more and waited and retested... he was only back at 54.. zoiks@!!! I went for the glucose tablets in his emergency kit... but asked the lifeguard if he had some juice... a woman and her son appeared with a juice box and said they noticed the glucose tablets... and her son was diabetic too... He drank the juice and was fine... and hopped back in the pool only to have his pod get knocked off by his sister after almost an hour in the pool... he was still only 125... after all that... it seemed to work out. and he got to be free for a while.. and it was pod change night anyway ;)

But the with the happy ending for Jared was a happy ending for me.. i swapped numbers with the other mom, and we will get the boys together (they are the same age) and I hope this is good... Jared always was asking why he is the only one around who got diabetes... if so many people have it .. why doesn't anyone else in the family or anyone else he meets...

We assure him he is not alone, but always wondered where the other 1 in 400 kids were... we found one... and I hope she calls to get together... if not for the kids, for me too... it is a open conversation with someone who understands... and she has been there.. her son was diagnosed at 2.5.. so she has really been there... and perhaps she will get something from me... if not just a good friendship

Ying and Yang... brain dump...

Go figure.. we had a great camping weekend, with numbers in range or low due to constant activity and beachcombing ;) ... a sad boy to come home, he has decided he wants to camp all week and next weekend until school starts! We arrive home (after a 2 hour drive - which took a bit longer than that) and a necessary pod change which has to happen to a strategic pod dislodge ;) on his part ...and an amazing first 'arm as a site' for the pod (he usually uses the belly) but the dr said that he is getting contact dermatitis from the tape and his belly desperately needs a break! he was great.. like a rockstar.. stating ' that hurt less than the belly ' which made us all feel good... and then chaos!!!!! 380 after his bath (Which is opposite of what it usually is - he tends to go lower in warm water) and then a high reading until midnite... multiple boluses before bed... checking every 2 - 3 hours all night with CGM readings and alarms of HIGH all nite... and then waking at 7:45 finally still at 240... no ketones amazingly... and then a nice reading of 120 before breakfast...just before 9am. (hey, i have learned to take any inrange number no matter what the time is... )

So riddle me this.... can emotions? change of site location? change of environment? change things that much... ???

before bed tonight he is reading high again... lets hope it is growth hormones, pre first grade anxiety... or something temporary.... i am too exhausted for another night of constant boluses...

p.s the doctor has us on the 'watch' for celiac sympotms as Jared is a frequent pooper.. and gets tummy aches before each one.. did i mention that frequent can be 4-5 times a day.. or after each meal?!?!? Is that common.. happpen to your kids? with our without celiac? We have a blood draw at the next visit to tell for certain... but I was wondering what is your experience with 'movements' and your kids.. and tummy aches.

thanks again for being out there :)